AWARDS & RECOGNITION
2006 Awards: Cross-Boundary Collaboration and Partnerships
California Statewide Information System for Prenatal and Newborn Screening Program
The Screening Information System (SIS) implemented by the California Department of Health Services (CDHS) is the critical cornerstone of California's prenatal and newborn genetic disease screening program, one of the largest and most comprehensive genetic screening programs in the world.
CDHS implemented SIS in July 2005 with two major goals in mind: to enhance their existing outdated information technology system and to expand the number of rare genetic diseases they screen for. Today, SIS enables physicians to diagnose and treat a wider range of genetic disorders than previously possible. Using the system, newborns throughout the state are now screened for 75 inherited and congenital disorders rather than the previous 39. Undetected, these rare disorders can cause devastating disabilities. But if caught quickly, they are often treatable. Changes as simple as altering an infant's diet can mean the difference between a normal life versus mental retardation or even early death.
"This is the largest program of its kind in the world. No baby in this program will fall through the crack."
Kimberly Belshé, Secretary, Health and Human Services Agency, State of California
SIS also allows the state to better manage test results and reporting and to achieve more efficient communications and collaboration between the multiple public and private entities involved in genetic screening, diagnosis and treatment. Once identified as having a genetic disease, SIS helps facilitate extraordinary follow-up for affected babies and their families until the disorder is fully diagnosed and treatment is initiated. This process involves an extensive amount of cross-boundary collaboration between labs, case coordinators, counselors, physicians and staff of the CDHS Genetic Disease Branch. The benefits of this collaboration are clear from the lives that have been affected.
“Austin is, as you can see, very healthy… right in line with his development… We’re thankful for the newborn screening that he had. We believe that it saved his life. We all sleep better now knowing that he sleeps well and that he will wake up in the morning.”—Linda Fernandez, speaking about her grandson, Austin, at a July 26, 2005 press conference announcing the kick-off of California’s expanded newborn screening system.
“I think it’s a miracle that parents can find out this information ahead of time….”—Sue Warner, speaking about her infant son, Bradley, at a July 26, 2005 press conference announcing the kick-off of the state’s expanded newborn screening system.
Ultimately, SIS allows CDHS to intervene earlier with more effective treatment of children with a wider range of genetic disorders, thereby radically increasing the chances that a baby born with a genetic abnormality in California can live a healthy life.
District of Columbia
Safe Passages Information System (Safe Passages)
In May 2005, the District of Columbia implemented the Safe Passages Information System to enable collaboration among the various human services agencies and private sector partners responsible for providing assistance to the district's neediest residents. An integration solution, Safe Passages supports automated data sharing across the organizational boundaries that separate district human services agencies from one another and their external partners.
Safe Passages' objective is simple—provide a quick, easy way for authorized caseworkers to determine whether their clients have case histories with other human services agencies that can help them fully understand the scope of their clients' issues and better address their clients' needs. Safe Passages meets this objective by enabling caseworkers to access consolidated client data through a single, web-based common interface. This interface, the Common Client View (CCV), allows an authorized caseworker to view a concise history of client contacts with all district human services agencies. With guaranteed "always on" availability, Safe Passages:
- Provides secure access to real-time, cross-agency client and case data;
- Permits searches for client data against an integrated client database;
- Uses a unique Master Client ID# to consolidate and track agencies' contacts with individual clients and identify the clients they commonly serve;
- Facilitates the discovery and correction of discrepancies in client and case data across multiple agencies;
- Limits access to client and case data in accordance with agency rules, HIPAA policies, and a host of other federal and district laws and regulations;
- Provides cross-agency statistical reports to facilitate citywide analyses on the characteristics of clients served and types of services delivered.
Suzanne J. Peck, Chief Technology Officer, District of Columbia
Prior to Safe Passages, district agencies functioned as silo, stovepipe operations that rarely interfaced with one another. The inability to access client information across agencies often led to excess efforts to develop accurate client histories, potential conflicts in servicing decisions, and unknown duplication when delivering client services. Using Safe Passages, caseworkers who perform life-enhancing and life-sustaining tasks are able to work together—as members of a virtual team—for the benefit of their common clients.
Click on the link to download program submission.
Online Tax Extension program
AR-Kansas: A Pair Prepared
No Child Left Offline
Department of Natural Resources
Mt.gov End-of-Life Registry
Business Solutions Center of Excellence (BSCoE)
Community Profile Database